The Chronicles of Illness

Embracing grief

ABOUT THE BOOK
"Remember that a diagnosis does not define you as a person. It may change certain things for you, but it won't make you less valuable or less capable of enjoying life."

"The Chronicles of Illness" is a heartfelt and practical guide for anyone navigating the complex emotions and challenges of living with a chronic illness, whether diagnosed or not. This book provides practical strategies and heartfelt advice to manage the emotional and physical aspects of chronic illness.

Included in "The Chronicles of Illness" is a Journey Journal, a companion tool to track appointments, medical information, emergency contacts, symptoms, and pain levels. It also features a section for daily mental health check-ins, offering additional support in managing health and well-being.

"The Chronicles of Illness" is more than just a guide; it’s a personal companion designed to foster understanding, strength, and a sense of community, Helping readers find a meaningful life despite chronic illness.
CHAPTER OUTLINE
Here are some of the topics discussed in the book. Please note that there are more subsections under each chapter; this is just a broad overview of the book.

Chapter 1: The Impact of Illness
Understanding The Diagnosis 
- Coping with the initial shock and navigating the healthcare system.
Chapter 2: Embracing Grief and Loss 
Recognising the Stages of Grief
-Finding support in grief counselling and honouring your loss.
Chapter 3: Re-Framing Your Perspectives 
You Are the Re-Framing Of Your Thoughts
-Embracing self-compassion and cultivating resilience.
Chapter 4: Building a Support Network
The Importance of Social Support -Strengthening relationships and joining support groups.
Chapter 5: Managing the Physical and Emotional -Dealing with Pain and Fatigue 
- Addressing anxiety and practising self-care.
Chapter 6: Finding Meaning
Exploring Personal Growth and Transformation - Engaging in activities and seeking purpose in life.
Chapter 7: Relationships and Intimacy
Maintaining Healthy Relationships
- Managing conflicts and navigating parenthood.
Chapter 8: Work and Illness
Balancing The Challenges of a Career -Communicating with employers and managing work-life balance.
Chapter 9: Facing End-of-Life 
Exploring Advance Care Planning 
- Conversations about exploring Advance Care Planning and the role of end-of-life doulas.Chapter 10: Accepting the Unknown
Uncharted Territory
-Finding solace in acceptance and documenting your journey.
Author
I am Leandra Joubert. I am walking the path and navigating this saga of what we call chronic illness, feeling the weight of uncertainty and the daily struggle of a body that often feels like it’s betraying me. I know what it’s like to face the scepticism of medical experts and the misunderstandings of a world that often doesn’t see your invisible battles.

I have a bachelor's degree in Drama and Theatre Arts, an honours degree in Psychology, and an MA specialisation in Gender Studies. I am a Specialist Wellness Counsellor registered with the Association of Supportive Counsellors and Holistic Practitioners (ASCHP) and have dedicated my education and career to understanding and supporting the well-being of others.

My book, "The Chronicles of Illness," is a profoundly personal project inspired by my own struggles with chronic illness and undiagnosed conditions. Despite the absence of a precise diagnosis, these health challenges have profoundly impacted my daily life, leading me to step down from my position as a lecturer at one of South Africa's largest universities.

However, my passion for the arts and mental health continues to drive me forward. When I'm not battling illness, I find joy in singing. This creative outlet and my commitment to exploring and understanding chronic illness fuels my work and writing. Through my book, I hope to shed light on the often-overlooked experiences of those living with chronic illness, offering both insight and empathy.
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After receiving an iron infusion, I developed leukocytoclastic vasculitis, initially appearing as a rash on my legs and later on my back, ears, and forehead. Despite numerous tests, including positive P-ANCA and C-ANCA results, a definitive diagnosis remains elusive.

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A little dot on the brain?

In November 2023, I experienced a severe headache that left me dizzy and unwell for an entire week, culminating in a terrifying incident where I felt like I was dying. Despite initial dismissals by doctors, a small white spot on my MRI indicated something was amiss.

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Explore the overlooked issue of medical gaslighting, where patients' symptoms are dismissed, leading to self-doubt and mistrust. Learn to recognise the signs, advocate for yourself, and find community support.

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My Story: The infinite journey

My Story: The infinite journey

In this heartfelt article, Leandra Joubert shares her personal journey through the challenges of living with chronic illness and the impact of medical gaslighting.

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The Journey Journal
The Journey Journal is an invaluable companion included in "The Chronicles of Illness," designed to help you track appointments, medical information, emergency contacts, symptoms, and pain levels. It also features a section for daily mental health check-ins, providing essential support for managing your overall well-being.

Thank you for reaching out and expressing interest in my book, The Chronicles of Illness. I appreciate your support and am delighted to hear from you. In addition to the book, I offer counselling services focused on chronic illness to support your journey.